My husband, my soulmate for 27 years and father to our four children, passed away on 14th December. He had lived for 13 months following a diagnosis of incurable, advanced colorectal cancer.
By the time he was diagnosed, it was already too late for the hope of a cure and he was too unwell to continue with his freelance work in management development. He became eligible for a range of benefits, which got us through the year. I was already unable to work, having been forced to give up a successful marketing career on the birth of our fourth child, Daisy, who has a rare and very complex genetic syndrome. As her full-time carer I was being paid £62.10 per week in Carers’ Allowance.
Almost from the moment Andy drew his last breath, those extra supportive benefits we’d had during his illness stopped. …
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